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Spectrum: Autism Research News

Tag: policy

February 2017

New administration stirs angst, activism among autism scientists

by  /  1 February 2017

President Trump’s comments on vaccines’ supposed link to autism and his proposed agency appointments are spurring scientists to take political action.

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January 2017
Child at doctor office preparing for infusion.

Soaring prices for orphan drugs slam U.S. families and insurers

The Orphan Drug Act has opened the door to almost unlimited price tags for drugs to treat rare diseases — burdening insurers, government programs, and families for whom obtaining the medication is often a matter of life and death.

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Drugmakers manipulate orphan drug rules to create monopolies

The system intended to help those with rare diseases is being manipulated by drugmakers to maximize profits and to protect niche markets for medicines that millions of people already take — and it’s all legal.

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Week of JanuaryJan
16th
2017

Healthy choices; gender divide; criminal citation

by  /  20 January 2017

Tensions mount as Trump considers candidates for top health positions, a documentary highlights the overlap between autism and gender dysphoria, and ‘citation cartels’ are gaming the publication system.

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Key provisions could disappear with Affordable Care Act repeal

If the ACA is repealed, it could mean loss of coverage for several surprising health provisions, including therapy for children with autism, breast-feeding support for working mothers and assistance with emergency room visits.

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Merger aims to create massive repository of medical records

by ,  /  12 January 2017

A merger between nonprofit California Integrated Data Exchange and the Inland Empire Health Information Exchange could lead to the pooling of medical records of 16.7 million people in California.

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Smoke, mirrors and Robert Kennedy Jr.’s vaccine safety panel

by  /  12 January 2017

Don’t let Robert F. Kennedy Jr.’s appointment distract us from fighting the policy changes that could have dire consequences for people with autism.

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December 2016
Week of DecemberDec
19th
2016

Screening scrutiny; tracking technology; sensitive Santa

by  /  23 December 2016

The jury is still out on autism screening, technology to track wandering children is under attack, and a sensitive Santa Claus sees children on the spectrum.

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Questions for Joshua Gordon: Circuit solutions for autism

by  /  13 December 2016

The new director of the National Institute of Mental Health says work on brain circuits may yield treatments for autism.

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‘Brexit’ threatens collaborations, funding for autism scientists

by  /  12 December 2016

Autism researchers in the United Kingdom fear that the country’s exit from the European Union will cut funding, scare away talent and strain partnerships.

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