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Spectrum: Autism Research News

Tag: ethics

February 2022

A new hub for participatory research: Q&A with Zachary Williams

by  /  22 February 2022

Last month, the International Society for Autism Research launched the INSAR Community Collaborator Request (ICCR), an online forum to foster collaborations between autistic people and autism researchers. Its creator, Zachary Williams, explains how researchers can make the most of this new resource.

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January 2022
Stack of bookmarked journals.

Why was a study about autism cited by a paper on plant beauty?

by  /  21 January 2022

Autism studies are appearing in the reference lists of entirely unrelated papers, suggesting what a few scholars worry is a plot to manipulate citations.

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December 2021
Gloved hands holding bag of placental cord blood containing stem cells.

‘Pay-to-participate’ autism stem-cells paper retracted

by  /  2 December 2021

One family paid more than $7,000 for their child to participate in a small clinical trial in Panama. The trial’s lead author did not disclose that detail.

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November 2021
Illustration shows researcher hand and the hand of a person with autism, holding a research paper aloft. Tone is optimistic.

Six steps to engaging in participatory autism research

by  /  4 November 2021

When scientists successfully partner with autistic people, the autistic community gains a voice in autism research, and the data are more reliable, experts say. Here’s how to build a successful collaboration.

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October 2021

Backlash from autistic community pauses research, exposes communication gaps

by ,  /  18 October 2021

Fallout over two recent studies highlights the potential power of social media to shape science, and the shifting dynamics between researchers and the autistic community.

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March 2021
Geometric figures in soft palette shows family group following a navigator or guide figure

Family navigation helps reduce disparities in autism diagnosis

by  /  22 March 2021

Training community members to help families access care increases the likelihood that children from low-income and minority groups will obtain diagnostic evaluations.

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January 2021
Brains of many colors with people standing on them, coming out of the shadows

Book Review: ‘Nobody’s Normal’ chronicles the intertwined history of mental illness and stigma

by  /  26 January 2021

Anthropologist and autism expert Richard Roy Grinker’s latest title reveals how our definitions of mental illnesses and notions of ‘normality’ reek of cultural biases that stop many from seeking help.

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December 2020
researcher facing off with the coronavirus.

Rewind: Spectrum’s best from 2020

by  /  23 December 2020

Our staff picks the stories, podcasts and special reports that stood out from the rest this past year.

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Two children are interacting with a toy in the shape of a brain.

How redefining autism could improve research on the condition

by  /  8 December 2020

Ami Klin wants researchers, clinicians and policymakers to think of autism as something inborn that only predisposes a child to certain traits. Early intervention can change the course of development.

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November 2020
Young boy looking upset, sits on couch with crossed arms.

Errors of omission: Why we are deeply concerned about research on autism therapies

Studies of autism treatments rarely report adverse events, and the scientists involved often fail to disclose their conflicts of interest.

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